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003			SA-PMU
005			20210418124218.0
008			151106s2016 nyu b 001 0 eng
010			_a 2015043570
040			_aDLC _beng _erda _cDLC _dYDX _dYDXCP _dBTCTA _dOCLCF _dBDX _dUOK _dVP@ _dKGSCL _dFM0 _dNLM _dIGA _dMKN _dWYZ _dION _dSFR _dMMU _dOCL _dCSJ
016	7		_a101686791 _2DNLM
019			_a957641994
020			_a9781479800117 (cl : alk. paper)
020			_a1479800112 (cl : alk. paper)
020			_a9781479889808 (pb : alk. paper)
020			_a1479889806 (pb : alk. paper)
020			_z9781479855377
020			_z1479855375
035			_a(OCoLC)926743416 _z(OCoLC)957641994
037			_bNew York Univ Pr, Attn Order Entry Dept 838 Broadway 3rd Fl, New York, NY, USA, 10003-4812 _nSAN 658-1293
042			_apcc
050	0	0	_aRC523 _b.B396 2016
060	0	0	_a2016 F-586
060	1	0	_aWT 155
082	0	0	_a616.8/31 _223
084			_a110
085			_atpb
086	0		_a-
100	1		_aBeard, Renée L., _eauthor.
245	1	0	_aLiving with Alzheimer's : _bmanaging memory loss, identity, and illness / _cRenée L. Beard.
264		1	_aNew York : _bNew York University Press, _c[2016]
300			_axi, 324 pages ; _c23 cm
336			_atext _2rdacontent
337			_aunmediated _2rdamedia
338			_avolume _2rdacarrier
504			_aIncludes bibliographical references and index.
505	0		_aPrologue: Lost in translation -- The meaning of memory loss: illness, identity, and biography -- History and technoscience: from senility to Alzheimer's -- Constructing facts in clinical practice: interpreting, diagnosing, and treating memory loss -- Being cognitively evaluated: learning to medicalize forgetfulness -- Hearing "the A word": the road to becoming an Alzheimer's patient -- Everyday life with diagnosis: the new normal -- Advocating Alzheimer's: biomedical structures and social movements -- Forget me not: the future of Alzheimer's.
520			_aNews of Alzheimer's disease is constantly in the headlines. Every day we hear heart-wrenching stories of people caring for a loved one who has become a shell of their former self, of projections about rising incidence rates, and of cures that are just around the corner. However, we don't see or hear from the people who actually have the disease. In Living with Alzheimer's, Renée L. Beard argues that the exclusively negative portrayals of Alzheimer's are grossly inaccurate. To understand what life with memory loss is really like, Beard draws on intensive observations of nearly 100 seniors undergoing cognitive evaluation, as well as post-diagnosis interviews with individuals experiencing late-in-life forgetfulness. Since we all forget sometimes, seniors with an Alzheimer's diagnosis ultimately need to be socialized into medicalized interpretations of their forgetfulness. In daily life, people with the disease are forced to manage stigma and the presumption of incompetence on top of the actual symptoms of their ailment. The well-meaning public, and not their dementia, becomes the major barrier to a happy life for those affected. Beard also examines how these perceptions affect treatment for Alzheimer's. Interviews with clinicians and staff from the Alzheimer's Association reveal that despite the best of intentions, pejorative framings of life with dementia fuel both clinical practice and advocacy efforts. These professionals perpetuate narratives about "self-loss," "impending cures," and the economic and emotional "burden" to families and society even if they do not personally believe them. Yet, Beard also concludes that in spite of these trends, most of the diagnosed individuals in her study achieve a graceful balance between accepting the medical label and resisting the social stigma that accompanies it. In stark contrast to the messages we receive, this book provides an unprecedented view into the ways that people with early Alzheimer's actively and deliberately navigate their lives.
650		0	_aAlzheimer's disease.
650		0	_aAlzheimer's disease _xPatients _vCare.
650	1	2	_aAlzheimer Disease _xtherapy.
650	2	2	_aDisease Management.
650		7	_aAlzheimer's disease. _2fast _0(OCoLC)fst00806532
650		7	_aAlzheimer's disease _xPatients. _2fast _0(OCoLC)fst00806557
650		7	_aSOCIAL SCIENCE / Gerontology. _2bisacsh
650		7	_aSOCIAL SCIENCE / Sociology. _2bisacsh
776	0	8	_iOnline version: _aBeard, Renée L. _tLiving with Alzheimer's. _dNew York : New York University Press, [2016] _z9781479855377 _w(OCoLC)945095843
938			_aBrodart _bBROD _n114764271
938			_aBaker and Taylor _bBTCP _nBK0017866182
938			_aYBP Library Services _bYANK _n12655927
938			_aYBP Library Services _bYANK _n12656002
029	1		_aAU@ _b000056304948
029	1		_aNLM _b101686791
942			_cBOOK
994			_aZ0 _bSUPMU
948			_hNO HOLDINGS IN SUPMU - 309 OTHER HOLDINGS
596			_a1 2
999			_c6718 _d6718